Mission
La Fundación de Acidemia propiónica se dedica a encontrar mejores tratamientos y una cura para la acidemia propiónica por financiar la investigación y el suministro de información y apoyo a las familias y los profesionales médicos.
Funding Research
Since its inception, PAF has funded over $1,400,000 in research.
Providing Information and support
- Attend and Exhibit at National Conferences
- Sitio web – links to Parent Guides, nutritional information, research publications, resources, etc…
- Hoja informativa sent out twice a year
- PA International Patient Registry
- PA Education Conference offers opportunity for families, researchers and medical providers to learn and interact
- PA Family Day give families time to learn from other families that are affected by PA in a warm, casual environment.
- Facebook Group gives families a chance to ask questions, give updates, and get support.
- Care Notebook for families that can be downloaded
- Toll free phone number (US)
Vision
To create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.