Hosted by Propionic Acidemia Foundation and The Community Health Clinic
The Community Health Clinic 730 East North Street, Shipshewana, IN 46565
Saturday, October 19, 2024
AGENDA
| 8:30-9:00 AM | Registration / Vendors Open / Continental Breakfast |
| 9:00-9:15 AM | Welcome/Introductions |
| 9:15-10:00 AM | Propionic Acidemia Overview, Zineb Ammous, MD, FACMG, The Community Health Clinic |
| 10:00-10:30 AM | Break – Meet other families and visit exhibitors |
| 10:30-11:15 AM | Understanding the pathogenesis of cardiac complications in PA patients, Joshua Keith Meisner, MD PHD, University of Michigan Health |
| 11:15-12:00 PM | New therapies/research in PA, Charles P. Venditti MD, PhD, National Human Genome Research Institute |
| 12:00-1:00 PM | Lunch / Small Group Discussion |
| 01:00-1:45 PM | Liver transplantation in PA, Kyle Soltys, MD, UPMC |
| 1:45-2:30 PM | Heart transplantation in PA, Anthony Zaki, MD | Cleveland Clinic |
| 2:30-3:00 PM | Break – Meet other families and visit exhibitors |
| 3:00-3:45 PM | Diet and supplements in PA, Elaine Wakefield, RDN, LD, CDE, CHC |
| 3:45-4:00 PM | Wrap up – Questions |
On October 19th, the Propionic Acidemia Foundation and the Community Health Clinic cohosted the PA Hope in the Heartland Family Conference. We are thankful to our generous Gold Sponsor Moderna and Silver Sponsor Nutricia. The conference was held at The Community Health Clinic in Shipshewana, IN.
Speakers included Dr. Zineb Ammous, Dr. Joshua Meisner, Dr. Charles P. Venditti, Dr. Kyle Soltys, Dr. Anthony Zaki, and Elaine Wakefield. Thanks to technology this was our first hybrid meeting and was attended in person by 122 people (25 affected families) and on Zoom with 31 people. Zoom attendees had the opportunity to participate and ask questions and join the discussion. Attendees were from 14 states and 5 countries. Videos of the presentations are available on youtube.
GOLD SPONSOR
SILVER SPONSOR
