Mission
The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
Funding Research
Since its inception, PAF has funded over $1,500,000 in research.
Providing Information and Support:
- Attend and Exhibit at National Conferences: Represent and connect with the community.
- Website Resources: Access Parent Guides, nutritional information, research publications, and more.
- Biannual Newsletter: Stay informed with updates sent twice a year.
- PA International Patient Registry: Contribute and benefit from shared data.
- PA Education Conference: A chance for families, researchers, and medical providers to learn and interact.
- PA Family Day: An opportunity for families affected by PA to connect and share experiences in a warm, casual setting.
- Facebook Group: A supportive space for families to ask questions, share updates, and connect.
- Care Notebook: Downloadable resource for family organization.
- Toll-Free Phone Number (US): Reach out for assistance.
Vision
To create a future where Propionic Acidemia can be prevented, and any affected individual can be cured and live a productive life.