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Mission

The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Funding Research

Since its inception, PAF has funded over $1,500,000 in research.

Providing Information and Support:

  • Attend and Exhibit at National Conferences: Represent and connect with the community.
  • Website Resources: Access Parent Guides, nutritional information, research publications, and more.
  • Biannual Newsletter: Stay informed with updates sent twice a year.
  • PA International Patient Registry: Contribute and benefit from shared data.
  • PA Education Conference: A chance for families, researchers, and medical providers to learn and interact.
  • PA Family Day: An opportunity for families affected by PA to connect and share experiences in a warm, casual setting.
  • Facebook Group: A supportive space for families to ask questions, share updates, and connect.
  • Care Notebook: Downloadable resource for family organization.
  • Toll-Free Phone Number (US): Reach out for assistance.

Vision

To create a future where Propionic Acidemia can be prevented, and any affected individual can be cured and live a productive life.

 

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