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For more information on confidentiality, please view our privacy policy.

Please choose the applicable form below registration to be part of our growing network of families, friends, and medical professionals.  Your registration will allow you to receive periodic updates about new developments on Propionic Acidemia, additional resources and foundation-related activities.

Full contact form
Name
Name
First Name
Last Name
Please check where applicable
Name of effected individual
Name of effected individual
First Name
Last Name
Do you have other children?
Do they have Propionic Acidemia?
Name
Name
First Name
Last Name
Please check “Yes” to authorize release of your information for communication and research purposes only.
I would like to be listed in the PAF’s mailing list and family directory. Information that will be distributed to other families include general contact information such as name, address, email, phone number, names and age of children and whether affected or not. By agreeing to be listed, I am willing to let another parent with a diagnosed child contact me for support.
I give PAF permission to share the submitted medical background information in a non-personal, aggregated format with interested medical professionals and scientific researchers for analysis and research purposes only.
I am interested in participating in research studies focused on improving treatment options and understanding the genetic make-up of Propionic Acidemia.
I give PAF permission to publish submitted photographs and personal stories on the web site and printed materials

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