Delima Page – 丙酸血症基金会

丙酸血症基金会筹款活动,,en,为了纪念劳伦和纪念珍娜,,en,詹娜和劳伦的妈妈将于11月参加温哥华秋季经典半程马拉松比赛,,en,......与其他PAF父母同时参加纽约马拉松比赛的同时,,en,我们正在为PAF筹款,,en,因为我们的成年女儿珍娜继续生活在这种疾病中,,en,需要更多的研究和资金来接近寻找治疗方法,,en,我们乐观地认为詹娜的一生,,en,将找到治疗方法,,en,珍娜现在是个成年人,,en,她在转,,en,11月18日,,en,她毕业于高中生活技能,,en,过渡到名为Gateway To Adulthood的计划,,en,GTA,,en,珍娜的新陈代谢状况一直很稳定,,en,去年詹娜转过身来,,en,她突然第一次癫痫发作,,en (PAF) in memory of Lauren and in honour of Jenna

帮助奥布里达成目标,,en,目标,,en,提出的,,en!

Goal: $2500 Raised as of 11/12: $1167

Aubrey, mom to Jenna and Lauren will run the Vancouver Fall Classic Half Marathon on Nov. 4^日, 2018… at the same time as other PAF parents are running the NY Marathon!

We are fundraising for PAF, as our adult daughter Jenna continues to live with this disorder. More research and funding arerequired to get closer to finding a cure! We are optimistic that in Jenna’s lifetime, a cure will be found.

Jenna is now an adult. She is turning 20 on November 18th! She graduated high-school life skills and is transitioned to a program called Gateway To Adulthood (GTA). Jenna’s metabolic status has been stable. 但, last year when Jenna turned 19 she suddenly had her first seizure. 对我们来说这是一个可怕的时间，因为我们不明白为什么她会患上癫痫症,,en,它经常发生,,en,伴随着代谢危机,,en,我们知道我们的协议,,en,然而,,en,随着癫痫发作，我们必须保持警惕并不断在Jenna面前,,en,因为它可能随时发生,,en,和任何“正常”的青少年一样,,en,珍娜渴望自己的独立，并寻求男孩的爱,,en,她承认自己是一个浪漫主义者，并且希望有一天她的王子很有魅力，让她从她的脚下走开,,en,珍娜是时尚达人,,en,太,,en,她想,,en,一天,,en,开始她自己设计的服装系列,,en,当她空闲时,,en,她喜欢创作故事,,en,爱情故事,,en,确切地说,,en,她会让她的朋友们表达她的故事,,en,像老板导演一样,,en,珍娜知道她想要什么，并告诉每个人他们的卷,,en. It was happening often. With a metabolic crisis, we knew our protocol. Yet, with seizures we had to be alert and constantly in Jenna’s presence, as it could happen at any time.

As with any “normal” teen, Jenna is longing for her independence and seeks the love of a boy. She admits to being a romantic and wants her prince charming to come one day and sweep her off her feet! Jenna is quite the fashionista, too. She wants to (one day) start her own clothing line that she designed. In her free time, she likes to create stories: Love stories, to be exact. She will ask her friends to act out her story. Like a boss director, Jenna knows what she wants and tells everyone their rolls! 我们为我们的女儿感到非常自豪,,en,一旦生了孩子，我们就认为我们不会活到过去的年龄,,en,现在是一个欣欣向荣的成年人，过着美好的生活,,en,帮助我们实现提高目标,,en,以下是去年的详细信息,,en,筹款,,en,结果,,en,今年标志着,,en,为了纪念劳伦，DELIMA家族活动的一年,,en,DELIMA家族,,en,Delima Page,,en. Once a baby we thought we would not see to live past age of 3, is now a thriving adult and living a beautiful life.

Help us reach our goal of raising $2500 对于PAF!

Below are details of previous year’s fundraising results & photos:

This year marks the 8^日 year of the DELIMA family campaign in memory of Lauren.

感谢您一直以来的支持.

Love, the DELIMA Family