可能的资源与参加会议的费用HELP,en
We know and understand that travel and lodging can be expensive to attend the conference. 在努力帮助成本, PAF waives the Conference Registration Fee for individuals with propionic acidemia and their immediate family. 包括10月19日的招待会和10月20日的午餐和晚餐,,en,PAF选择了Embassy Suites by Hilton Columbus OH，作为一项考虑，并提供免费自助停车服务，并订购含早餐,,en. PAF chose the Embassy Suites by Hilton Columbus OH with expense as a consideration with free self parking and made to order breakfast included.
We have compiled a list with links that may help. 如果您知道任何其他资源, please let us know so we can add them. 您将要启动早了一些有期限. 请与我们联系： [email protected] if you would like help with the process.
TREATMENT CLINICS
Some clinics provide grants to further the education of patients with chronic conditions. Check with your clinics as they may also have other suggestions.
CLUBS AND ASSOCIATIONS
It often pays to ask professional or charitable organizations. These large organizations often promote raising money for worthy causes, including those involving chronic illness. Here is a list of clubs and organizations to get you started. Keep in mind that these usually have a local chapter, and it’s best to deal with them at that level.
NATIONAL AGENCIES OR GROUPS
The ARC of the United States. Each chapter offers different programs/services, so you need to check your local chapter.
STATE AND/OR REGIONALLY LIMITED
All states have Councils on Developmental Disabilities, and some will fund conference travel. 如果你的状态不是下面列出, you should take a minute to review your own state’s CDD page in case we have overlooked something. Here is a link to 发育残疾董事会通过状态.
For states that are not listed below, if there was no specific link to a consumer investment/empowerment fund, it does not mean there is not such a fund in your state. Contact the council directly and inquire if they have available grants to help families & individuals with disabilities to attend conferences relating to that disability.
Florida: Hannah & Friends
Idaho: 理事会发展障碍
伊利诺伊州: If you are the parents or caretaker of a young child with disabilities, live in North or West Suburban Cook County, Du Page County, McHenry County, Kane County or Lake County and your child is under 6 years of age, Illinois StarNet has a Family Fellowship
Consumer Stipend Funds Application
Indiana
Maryland: The state’s Developmental Disabilities Council
New Jersey: Hannah & Friends
New York: Hannah & Friends
Nevada: The Governor’s Council on Developmental Disabilities
North Carolina: 让沃尔夫 - 罗西的参与者参与基金 , 应用
Ohio: The Cuyahoga County Board of Developmental Disabilities Family Support Program may fund registration costs for conferences for families on topics related to the eligible individual. Prior approval is required for this program to fund training and conference attendance. The cost of these services will be deducted from your total annual program allowance. To check eligibility, email [email protected] or by phone at 216-241-8230.
Rhode Island: Hannah & Friends
Tennessee: The state’s Council on Developmental Disabilities
Utah: Empowerment Fund
Please contact [email protected] with any questions.