委员会
Newsletter Committee is responsible for compiling, 编辑, 和通讯的分布.
Committee members: 朱莉·霍华德, 珍妮弗Mouat
Fundraising Committee is responsible for addressing fundraising.
Fundraising Chair: 布列塔尼·史密斯
研究委员会 is responsible for distributing information to current and potential researchers on grant opportunities.
Committee members: Jill Chertow, 布列塔尼·史密斯, Maria L. Cotrina, Angela Waits
外联委员会 is responsible for reaching out to families and medical providers.
社交媒体志愿者: 维罗妮卡·洛佩兹(Veronica Lopez)
Warrrior生日俱乐部 负责向丙酸血症及其兄弟姐妹的个人发送生日贺卡. 需要注册.
委员会: 希瑟·麦卡锡(Heather McCarthy)和橡树草坪(Oak Lawn)故乡中学
大会规划委员会,,en,负责与勇士智慧帮助会议,,en,安伯·莫斯,,es is responsible for helping with the Warrior Wisdom Conference
Committee members: 招募 2022 Conference
Email [email protected] 加入一个委员会的更多信息,.
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