Amber B. – 21 years old – 二月更新 2017
琥珀是一个很快乐的人, 甚至当她感觉并不好, 她总是面带微笑. 她热爱乡村音乐; 卢克·布赖恩是她的最爱. 她从高中可毕业 2017 并会在与她的朋友在本地培训中心开始了一天的程序. 在过去几年中她的健康状况一直向上和向下与她处理C-DIFF, DVT (血块) 在她的腿, 糖尿病, 代谢招, 和长QT. But, 通过这一切，她是一名战士，并已反弹又快又好. 她功能之4-5岁级别, 但每天仍然取得进展. 她是一个令人惊讶的坚强的人，谁给我力量的每一天. ————————————————————————————————————————
I have a little sister, Tiffany, she has PA too. To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office. God Bless You, |
Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School. I have PA and I’m ok with it. My favorite thing to do is listen to country music. My favorite artist, right now, is Carrie Underwood. I love to sing with her. I love to eat anything that does not eat me first. My favorite foods are spaghetti with marinara sauce, brocolli, and french fries. I eat and drink everything by mouth, including my formula. I kinda like the flavor of it. I do have significant developmental delays, but I am very happy. I have cool hearing aids, they are blue and white, and I just started wearing glasses. Not too bad either. I have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.