Mission

A Fundação Acidemia Propionic é dedicada a encontrar melhores tratamentos e uma cura para Acidemia Propionic pelo financiamento da investigação e prestação de informações e apoio às famílias e profissionais médicos.

Funding Research

Since its inception, PAF has funded over $1,400,000 in research.

Providing Information and support

• Attend and Exhibit at National Conferences
• Site – links to Parent Guides, nutritional information, research publications, resources, etc…
• Boletim informativo sent out twice a year
• PA International Patient Registry
• PA Education Conference offers opportunity for families, researchers and medical providers to learn and interact
• PA Family Day give families time to learn from other families that are affected by PA in a warm, casual environment.
• Facebook Group gives families a chance to ask questions, give updates, and get support.
• Care Notebook for families that can be downloaded
• Toll free phone number (US)

Vision

Para criar um futuro onde Propionic Acidemia pode ser prevenida e qualquer indivíduo afetado pode ser curado e viver uma vida produtiva.