Agenda della PAF Warrior Wisdom Conference,,en,Agenda della PAF Warrior Wisdom Conference,,en,Agenda della PAF Warrior Wisdom Conference,,en,Agenda della PAF Warrior Wisdom Conference,,en

Nationwide Hotel and Conference Center

100 Green Meadows Drive South

Lewis Center, OH

Friday, 19 ottobre,,en,12 ottobre,,en,radio radio-498 default label_first,,en,19 ottobre,,en,12 ottobre,,en,radio radio-498 default label_first,,en,19 ottobre,,en,12 ottobre,,en,radio radio-498 default label_first,,en,19 ottobre,,en,12 ottobre,,en,radio radio-498 default label_first,,en

6:00PM-9:00Registrazione PM,,en,Cash Bar *,,en,Colazione a buffet AM per gli ospiti che soggiornano presso l'hotel,,en,Registrazione AM,,en,AM Benvenuto,,en,Gli espositori di Break / Visit AM,,en,AM "Storia naturale,,en,Oleg Schchechlokov,,en,mezzogiorno Domande / Discussioni,,en,PM Pranzo / foto di gruppo,,en,Discussione / Domande PM,,en,Linee guida sulla gestione SERN-GMDI basate su consenso e consenso,,en,Discussione / Domande PM,,en,Espositori di rottura / visita di PM,,en,PM Domande / discussioni,,en, Welcome Reception, Cash Bar*.

Edgewater Dining Room

Saturday, October 20th

7:00AM-8:15AM Buffet Breakfast for guests staying at the Hotel. Exhibitor Set-up

8:00AM-8:30AM Registration

Grand Ballroom 1

8:30AM-9:00AM Welcome – Opening Remarks and Introductions, Jill Chertow, President PAF

9:00AM-9:30AM “Family Panel”

9:30AM-10:00AM “PA Game”, Moderated by Keiko Ueda, MPH, RD

10:00AM-10:30AM Break/Visit Exhibitors

10:30AM-11:00AM “Semplice parlare di acidemia propionica,,en,Aggiornamento da Ohio's Amish Country.,,en,Olivia Wenger,,en,Semplice parlare di acidemia propionica,,en,Aggiornamento da Ohio's Amish Country.,,en,Olivia Wenger,,en,Semplice parlare di acidemia propionica,,en,Aggiornamento da Ohio's Amish Country.,,en,Olivia Wenger,,en,Semplice parlare di acidemia propionica,,en,Aggiornamento da Ohio's Amish Country.,,en,Olivia Wenger,,en: Update from Ohio’s Amish Country”, Olivia Wenger, MD

11:00AM-11:45AM “Natural History, Physiology, Microbiome and Biochemistry Studies of Propionic Acidemia”, Oleg Schchechlokov, MD

11:45AM-12:00noon Questions/Discussions

12:00noon-1:00PM Lunch/Group Photo

Grand Ballroom 3

1:00PM-1:30PM “Multi-Disciplinary Protocol for Liver Transplant in Propionic Acidemia”,

Grand Ballroom 1 Jodie M. Vento, MGC, LCGC

1:30PM-1:45PM Discussion/Questions

1:45PM-2:15PM “Nutritional Intake Recommendations for Propionic Acidemia: Evidence and Consensus Based SERN-GMDI Management Guidelines” Elaina Jurecki, MS, RD

2:15PM-2:30PM Discussion/Questions

2:30PM-3:00PM Break/Visit Exhibitors

3:00PM-3:30PM “Rationale behind changes in the nutritional management of PA/MMA” Irini Manoli,,en,Irini Manoli,,en,Irini Manoli,,en,Irini Manoli,,en, MD, Dottorato di Ricerca

3:30PM-3:45PM Questions/discussions

3:45PM-4:00PM “PROP Nutritional Guidelines Tool Kit Development” Keiko Ueda, MPH, RD

4:00PM-5:00Domande PM / Wrap Up,,en,Cash bar per cena / rete PM *,,en,Colazione AM per gli ospiti che soggiornano in Hotel,,en,Gara pomeridiana o tifo per i corridori PA nella Maratona Nationwide Children's Hospital,,en

5:30PM-9:00PM Dinner/Networking Cash Bar*

Grand Ballroom 3

Sunday, October 21, 2018

7:00AM-8:30AM Breakfast for guests staying at the Hotel.

7:00AM -noon Run or cheer on the PA Runners in the Nationwide Children’s Hospital Marathon – stop by PAF table for information.

Children’s room will be open 10:30AM – 4:00PM in Grand Ballroom 4.

* Hotel guests over 21 in the room block will receive 2 drink tickets per night that can be used at the Cash Bar.

Speakers, topics, and time slots subject to change. Last updated 10/16/18