L'ambre est une personne très heureuse, même quand elle ne se sent pas bien, elle est toujours souriant. Elle aime la musique country; Luke Bryan est son favori. Elle sera diplôme d'études secondaires en mai 2017 et commencera un programme de jour dans un centre de formation local avec ses amis. Ces dernières années, sa santé a été et avec elle traiter c-diff, DVT (caillot de sang) dans sa jambe, Diabète, coups métaboliques, et QT long. But, à travers tout cela, elle est un combattant et a rebondi vite et bien. Elle fonctionne à un niveau de 4-5 ans, mais continue à faire des progrès tous les jours. Elle est une personne incroyablement forte qui me donne de la force chaque jour.

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Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School. I have PA and I’m ok with it. My favorite thing to do is listen to country music. My favorite artist, right now, is Carrie Underwood. I love to sing with her. I love to eat anything that does not eat me first. My favorite foods are spaghetti with marinara sauce, brocolli, and french fries. I eat and drink everything by mouth, including my formula. I kinda like the flavor of it. I do have significant developmental delays, but I am very happy. I have cool hearing aids, they are blue and white, and I just started wearing glasses. Not too bad either. I have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.

I have a little sister, Tiffany, she has PA too. To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office.

God Bless You,
Amber B.
Georgia, United States