Fondation acidémie propionique

FY 2013-2014 Annual Report

1963 McCraren Road

Highland Park, IL 60035

MISSION: La Fondation acidémie propionique est dédié à la recherche de meilleurs traitements et un remède pour acidémie propionique en finançant la recherche et en fournissant des informations et un soutien aux familles et aux professionnels de la santé.

VISION: To create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.


FINANCIAL REPORT

Revenue:

Contributions: $62,042

Interest Income: $124

In Kind Donations: $724

Total Revenue: $62,890

Expenses:

Research Grants/Registry: $31,398

Programs & Outreach: $862

Printing (in-kind): $724

Fundraising: $621

Gestion & General Expenses: $1,241

Total Expenses: $34,846

Cash Assets 8/1/2013: $117,370

Cash Assets 7/31/2014: $145,413

 

Note: Off $1 due to rounding

PROGRAM ACCOMPLISHMENTS

Recherche: Grant Disbursement:

  • $28,697 Loren Pena, M.D., PhD., Duke University, Durham, NC

“A prospective study of biochemical parameters reflective of metabolic

control in propionic acidemia”

Outreach:

  • Distributed fall and spring newsletters to affected families, clinicians, and donors

BOARD OF DIRECTORS/OFFICERS

Jill Chertow Francs, President
Angela Waits, Secrétaire
Patricia K. Yeary, Trésorier
Sheila Buice
Eric McAdams
Nicole Russell
Ann Marie Young

Board disclosure:
Donations made by board members totaled $704