Amber B. – 21 years old – aktualisiert Februar 2017
Bernstein ist eine sehr glückliche Person, selbst wenn sie nicht ein gutes Gefühl, sie lächelt immer. Sie liebt Country-Musik; Luke Bryan ist ihr Liebling,,en,Sie wird von der High School im Mai seinen Abschluss,,en,und wird ein Tagesprogramm in einem örtlichen Ausbildungszentrum mit ihren Freunden beginnen,,en,In den letzten Jahren ihre Gesundheit war auf und ab mit ihrem Umgang mit c-diff,,en,aber noch Fortschritte machen jeden Tag,,en,Sie ist eine erstaunlich starke Person, die Kraft gibt mir jeden Tag,,en. She will be graduating from high school in May of 2017 and will begin a day program at a local training center with her friends. The last few years her health has been up and down with her dealing with c-diff, DVT (Blutgerinnsel) in ihrem Bein, Diabetes, metabolische Hüben, und Long-QT. But, durch all das ist sie ein Kämpfer und hat sich wieder gut erholt und schnell. Sie arbeitet in einem 4-5-jährigen Niveau, but is still making progress every day. She is an amazingly strong person who gives me strength every day. ————————————————————————————————————————
I have a little sister, Tiffany, she has PA too. To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office. God Bless You, |
Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School. I have PA and I’m ok with it. My favorite thing to do is listen to country music. My favorite artist, right now, is Carrie Underwood. I love to sing with her. I love to eat anything that does not eat me first. My favorite foods are spaghetti with marinara sauce, brocolli, and french fries. I eat and drink everything by mouth, including my formula. I kinda like the flavor of it. I do have significant developmental delays, but I am very happy. I have cool hearing aids, they are blue and white, and I just started wearing glasses. Not too bad either. I have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.