Hosted by Propionic Acidemia Foundation and The Community Health Clinic
The Community Health Clinic 730 East North Street, Shipshewana, IN 46565
Saturday, October 19, 2024
AGENDA
| 8:30-9:00 AM | Registration / Vendors Open / Continental Breakfast |
| 9:00-9:15 AM | Welcome/Introductions |
| 9:15-10:00 AM | Propionic Acidemia Overview, Zineb Ammous, MD, FACMG, The Community Health Clinic |
| 10:00-10:30 AM | Break – Meet other families and visit exhibitors |
| 10:30-11:15 AM | Understanding the pathogenesis of cardiac complications in PA patients, Joshua Keith Meisner, MD PHD, University of Michigan Health |
| 11:15-12:00 PM | New therapies/research in PA, Charles P. Venditti MD, PhD, National Human Genome Research Institute |
| 12:00-1:00 PM | Lunch / Small Group Discussion |
| 01:00-1:45 PM | Liver transplantation in PA, Kyle Soltys, MD, UPMC |
| 1:45-2:30 PM | Heart transplantation in PA, Anthony Zaki, MD | Cleveland Clinic |
| 2:30-3:00 PM | Break – Meet other families and visit exhibitors |
| 3:00-3:45 PM | Diet and supplements in PA, Elaine Wakefield, RDN, LD, CDE, CHC |
| 3:45-4:00 PM | Wrap up – Questions |
* Program subject to change
A limited number of no-cost Echocardiograms and EKGs for the patients and families with PA will be available.
To schedule, contact Daniela at 717-925-8300.
REGISTRATION
Registration is free for affected individuals, their families, students, residents, and fellows. Industry attendees are $500 per attendee.
If you would like to participate Virtually via Webinar, please fill out the registration form and under other special needs, type in please send link for webinar. Please note the times are Eastern Time in the United States.
Please contact us if you have any questions at [email protected].
TRAVEL
By Plane: South Bend is the closest airport (around 1 hour to the clinic), Chicago airports are 2.5 hours away. Grand Rapids and Fort Wayne airports are 1.5 hours away.
HOTEL RECOMENDATIONS
Van Buren Hotel (Shipshewana) – *CHC Special Rate
Blue Gate Garden Inn (Shipshewana)
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