Ben S.

Our son, Ben, was born on November 23, 2002. He is our first and only child. He was born on his due date and was very healthy at 8 lbs. 3 oz. He was a wonderful, healthy baby and showed no signs of any problems until he was 17 months old. He woke up one morning and after breakfast started to vomit. We thought it was his first flu. By the next day, he started to become dehydrated so we took him to the doctor. After receiving IV fluids, he didn't bounce back as quickly as our doctor had hoped, so he ran some tests for inborn errors of metabolism. At the time, we had no idea what this meant, which was good since the results took 3 weeks. We went on living our normal life until we received the news that Ben was diagnosed with PA. Two days later we went and saw Dr. Jon Wolff at the University of Wisconsin. He and our dietician, Michelle, have been so wonderful in teaching us all we need to know to correctly care for Ben. That was one year ago. I am happy to say that Ben is a healthy, smart, funny 2 1/2 year old little boy. He is in PT and OT weekly and Speech Therapy twice a month. He is where he should be for his age in all areas. Ben does not have a G-tube. He drinks formula with strawberry Quik from a sippy cup and eats all normal foods. He is allowed 13 grams of protein per day. We thank God each day for gifting us with Ben. He is the light of our life, and though there is a constant worry, we wouldn't change any part of him.