PA FAMILY DAY – POSTPONED

PROPOSED SCHEDULE

9:00am – Guest arrival, visit vendor tables, get coffee or fruit
9:25am – Welcome & Introductions,  Jared Beasley, CHC Executive Director
9:30am – PA: The knowns and the unknowns – CHC experience, Dr. Zineb Ammous, CHC Clinical Geneticist
9:50am – PA  Natural history study, Dr. Oleg Shchelochkov, NIH
10:20am – Patient experience in research,  NIH
10:40am – Research: Participation Matters, Brittany Smith, Propionic Acidemia Foundation Treasurer
10:50am – Propionic Acidemia Foundation, Jill Chertow, Propionic Acidemia Foundation President
11:00am – Q&A panel
11:45am-2:00pm – Lunch, fellowship, visit vendor tables, testing

*The schedule is tentative and may be subject to change.

THANK YOU ALL FOR REGISTERING – WE WILL LET YOU KNOW WHEN WE HAVE A NEW DATE.

 

 

Recent PAF Newsletters

Spring 2025 PAF Newsletter
Summer 2024 PAF Newsletter Spring 2024 PAF Newsletter
Dr. Charles P. Venditti, M.D., Ph.D
Research approaches to study propionic acidemia: lessons from patients and mice
Zineb Ammous, MD FACMG, PA 
Propionic Acidemia Overview
Elaine Wakefield, RDN, LP
Fueling the Body
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