New and Upcoming Events

Newsletter Updates

Fall stories/articles due by September 1st, 2025.  Please email to paf@pafoundation.com .

Please register with PAF if you would like to receive the newsletter by mail or email or update your contact information.

Grant Applications

Grant Applications due October 1, 2025 – For questions, contact research@pafoundation.com

PA International Patient Registry

The PA International Patient Registry provides a way for PA patients and families worldwide to improve the understanding of the disorders and accelerate research by reporting information about how the disorder affects them.  The Registry is itself an IRB-approved research project and the data collected will help characterize the condition of people living with PA.

PARunners Pounding the Pavement for PA

Join the PAF Pounding the Pavement for PA team or start your own!  Run in any race, around your block, or become a “virtual runner” Contact Brittany Smith for more information at paf@pafoundation.com .  Check out events to follow our progress. 

Privacy Policy

The PAF Privacy Policy has been updated to include EU. The link to the Privacy Policy can be found at the bottom of every webpage.