New and Upcoming Events
Advancing Research and Care: Propionic Acidemia Symposium
Join us in Kidron, Ohio, on July 11-12, 2025, for an inspiring symposium dedicated to propionic acidemia. This event brings together leading researchers, healthcare professionals, and families affected by this rare metabolic disorder. Our goal is to foster collaboration, share groundbreaking research, and explore innovative treatments that can transform lives. Together, we can make a difference and pave the way for a brighter future for those living with propionic acidemia.
October 19, 2024 – PAF and the Community Health Clinic will be co-hosting PA Hope for the Heartland Family Education Conference in Shipshewana, IN. Registration is open: 2024 October 19 Conference – Propionic Acidemia Foundation (pafoundation.com) Limited space. Conference is expected to fill up.
November 2024 – NY Marathon PA Runners will be running to raise money for PAF.
Newsletter Updates
Fall Newsletter is now available. Spring stories/articles due March 1st, 2025. Please email to paf@pafoundation.com .
Please register with PAF if you would like to receive the newsletter by mail or email or update your contact information.
Grant Applications
In Spring 2024, PAF awarded a $50,000 Initial Research Grant for 4/1/24-3/31/25.
Grant Mitchell, MD, CHU Saint-Justine, Montreal, Canada
“New approaches to understanding and treating propionic acidemia.”
Grant Applications due October 1, 2025 – For questions, contact research@pafoundation.com
PA International Patient Registry
The PA International Patient Registry provides a way for PA patients and families worldwide to improve the understanding of the disorders and accelerate research by reporting information about how the disorder affects them. The Registry is itself an IRB-approved research project and the data collected will help characterize the condition of people living with PA.
PARunners Pounding the Pavement for PA
Join the PAF Pounding the Pavement for PA team or start your own! Run in any race, around your block, or become a “virtual runner” Contact Brittany Smith for more information at paf@pafoundation.com . Check out events to follow our progress.
Privacy Policy
The PAF Privacy Policy has been updated to include EU. The link to the Privacy Policy can be found at the bottom of every webpage.