Fundación de Acidemia propiónica

FY 2013-2014 Annual Report

1963 McCraren Road

Highland Park, Illinois 60035

MISSION: La Fundación de Acidemia propiónica se dedica a encontrar mejores tratamientos y una cura para la acidemia propiónica por financiar la investigación y el suministro de información y apoyo a las familias y los profesionales médicos.

VISION: To create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.


FINANCIAL REPORT

Revenue:

Contributions: $62,042

Interest Income: $124

In Kind Donations: $724

Total Revenue: $62,890

Expenses:

Research Grants/Registry: $31,398

Programs & Outreach: $862

Printing (in-kind): $724

Fundraising: $621

Manejo & General Expenses: $1,241

Total Expenses: $34,846

Cash Assets 8/1/2013: $117,370

Cash Assets 7/31/2014: $145,413

 

Note: Off $1 due to rounding

PROGRAM ACCOMPLISHMENTS

Investigación: Grant Disbursement:

  • $28,697 Loren Pena, Doctor de Medicina, PhD., Duke University, Durham, NC

“A prospective study of biochemical parameters reflective of metabolic

control in propionic acidemia”

Outreach:

  • Distributed fall and spring newsletters to affected families, clinicians, and donors

BOARD OF DIRECTORS/OFFICERS

Jill Chertow francos, President
Angela Waits, Secretario
Patricia K. Yeary, Tesorero
Sheila Buice
Eric McAdams
Nicole Russell
Ann Marie joven

Board disclosure:
Donations made by board members totaled $704