Propionic Acidemia Foundation

FY 2013-2014 Annual Report

1963 McCraren Road

Highland Park, IL 60035

MISSION: The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

VISION: To create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.


FINANCIAL REPORT

Revenue: 

Contributions:                               $62,042

Interest Income:                                $124

In Kind Donations:                            $724

Total Revenue:                          $62,890

Expenses:

Research Grants/Registry:             $31,398

Programs & Outreach:                       $862

Printing (in-kind):                               $724

Fundraising:                                       $621

Management & General Expenses:  $1,241

Total Expenses:                          $34,846

Cash Assets 8/1/2013:    $117,370

Cash Assets 7/31/2014:  $145,413

 

Note:  Off $1 due to rounding

 

PROGRAM ACCOMPLISHMENTS

Research: Grant Disbursement:

  • $28,697 Loren Pena, M.D., PhD., Duke University, Durham, NC

           “A prospective study of biochemical parameters reflective of metabolic

            control in propionic acidemia”

Outreach:

  • Distributed fall and spring newsletters to affected families, clinicians, and donors

BOARD OF DIRECTORS/OFFICERS

Jill Chertow Franks, President
Angela Waits, Secretary
Patricia K. Yeary, Treasurer
Sheila Buice
Eric McAdams
Nicole Russell
Ann Marie Young

 

Board disclosure: 
Donations made by board members totaled $704