Select any link below for more information:

PAF Newsletters

Spring 2008	Fall 2007	April 2007	August 2006

Patient Education and Support

• Propionic Acidemia Care Notebook - English PDF
• Propionic Acidemia Care Notebook - Spanish PDF
• Build Your Own Care Notebook - American Academy of Pediatrics
• Parents' Guide to PA, California Department of Health Services
• Propionic Acidemia Foundation Brochure - English PDF
• Propionic Acidemia Foundation Brochure - Spanish PDF
• Glossary of Commonly Used Terms
• National Human Genome Research Institute - Talking Glossary of Genetic Terms

• Ask me 3 - recommendations for when you visit your doctor
• Bereavement Support
• Family Medical Leave Act
• Health Insurance Info.Net
• NICHCY- National Dissemination Center for Children with Disabilities.
• Support Groups
• Transportation and Lodging
• Welcome to Holland by Emily Perl Kingsley
• When your child with special needs goes to school

Resource Guides (United States)

• Centers for Medicare & Medicaid Services (Medicaid Waiver and Demostrations List)
• State By State

Medical Publications:

Diagnosis

• Comprehensive Newborn Screening
• Packets for Parents
• Prenatal Diagnosis of Propionic Acidemia

Medical

• PA Current Research List
• Brain
• Clinical Testing
• Descriptions of Metabolic Disorders: PA
• Emergency Room Sample Letter
• Genetics 101
• Heart
• Hyperammonemia
• Liver Transplant
• Medications
• Molecular Biology/Biochemistry
• Neutropenia
• Pancreatitis
• Published Articles on Propionic Acidemia                    

Treatment/Nutrition    

• Supplements (Amino acids and l-carnitine)   
• Low Protein Foods
• Measuring Formula
• Metabolic Formulas
• Ordering a Gram Scale
• Financial Assistance

Therapy

• Feeding Assessment
• Therapy and Communication

Research

• The importance of research   
• Knockout Mouse Production

Current Research on Organic Acidemias Addendum

Propionic Acidemia Foundation

1963 McCraren Road

Highland Park, IL  60035

U.S. Toll Free 1-877-720-2192

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