Jordan F.

Hi!  

My brother, Jordan, is 9 years old and has early onset Propionic Acidemia.   We live in Highland Park, Illinois. He likes to play chase with me, play with his Video Now Jr. and swing on the swing in our basement.   Jordan doesn’t know how to talk yet and I worry about what kind of job he will be able to get when he grows up.    He uses a computer with a touch screen to communicate.

Jordan is in 3rd grade and goes to a special education school.   I wish he was at school with me, but our school doesn’t have a special education classroom for Jordan.     I also worry about where Jordan is going to live when he grows up, but my mom assures me that he will have choices.  I love my brother very much and when I grow up I will try and help find a cure.   I am 12 and would love to talk with other kids that have sisters or brothers with PA.   

Written by Ryan, Jordan's big brother