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Events

 

Upcoming Events

PAF EDUCATION CONFERENCE and FAMILY DAY

AUGUST 7, 2010 CHICAGO, ILLINOIS.  

Brochure 

Registration Form

Hotel Information

Driving Directions to Hotel

Limited sponsorship opportunities available.

Contact paf@pafoundation.com for more information

 

Previously Held PA Family Days

Family Day is an opportunity for PA Families and Friends to get together in a casual atmosphere to share stories and information.

4th Annual PA Family Day

Saturday, July 25, 2009, Burlington, KY

Click here for more information in English.  Click here for information in Spanish.

More Photos.

3rd Annual PA Family Day

Saturday, June 21,  2008, Lexington, KY

PA Family Day Flier.  

More photos....  

2nd Annual PA Family Day

Saturday, August 11, 2007, Highland Park, IL  11-5 pm  

Download PA Family Day Flier in English

Download PA Family Flier in Spanish

Photos from Family Day

1st Annual PA Family Day

Saturday, October 7th, 2006   Highland Park, IL

 

Previously Held Events benefitting PAF:

Beef and Beer to Benefit Propionic Acidemia, Philadelphia, PA

Saturday, June 12, 2010 7:30 - 10:30 pm

Naperville Lights of Love 2009, Naperville, IL:

For each $1 donated to the PA Foundation this season, a light will be added to the Smith house in honor of their daughter, Talli, who has PA.

Jewel Osco Shop & Share Days - Propionic Acidemia Foundation will hold a Shop & Share fund-raising program on the dates below at all Jewel-Osco Stores.  By shopping at Jewel-Osco on one of those days, 5% of the total purchases, excluding tax, will be donated by Jewel-Osco to the organization.  Propionic Acidemia Foundation will use the money generated by their Shop & Share to help fund research to find better treatments and a cure for Propionic Acidemia.   Anyone interested in helping by shopping at Jewel-Osco on those dates will need a "Shop and Share Identification Slip" which can be downloaded:

Download slips for 11/16/09; 11/17/09 and 11/18/09 - raised $24.77

Download slips for 8/24/09; 8/25/09 and 8/26/09 - raised $52.53

Download slips for 9/14/09; 9/15/09 and 9/16/09 - raised $27.41

4th Annual Cornhole Tournament & Tailgate Party for PA

September 19, 2009 - Gahanna, OH - raised over $15,000 for Propionic Acidemia Foundation

Climbing for a Cure - Michelle Burns and Shawna Macnamara successfully climbed Mount Ranier in honor of Michelle's daughter, Kaitlyn, on July 5, 2009 and raised over $10,000 for Propionic Acidemia Foundation.

Lights of Love - Illinois vs. Ohio

For every $1 donation to Propionic Acidemia Foundation for Lights of Love, a bulb will be added.  Thanks to another successful Lights of Love Campaign - over $4,000 was raised. (Illinois received $730 for Lights of Love and Ohio received $3328).

Updated Pictures

New York Marathon 11/2/08 - Marisa Cotrina is running for a cure in the New York Marathon.   She has set up Gabriel's Fundraising Page  You can sponsor her at the site.  Marisa raised over $9366.  

3rd Annual Cornhole Tournament & Tailgate Party for Propionic Acidemia - September 13, 2008  - Gahanna, OH

Bianca's Bike Night, Connecticut - August 24, 2008

Pork Roast & Cornhole Tournament, Bun's Party Barn, Pomeroy, OH (more info to come - visit www.gwenforacure.com - June 28, 2008

6th Annual Propionic Acidemia Fundraiser sponsored by Squadron 21 Sons of the American Legion - April 12, 2008, Bath, Maine  5:00 - ???

Crop-A-Thon - February 18th, check out www.gwenforacure.com

Lights of Love 2007 Columbus, Ohio

Corntoss Tournament for PA-Gahanna, OH - September 29th, 2007

Indian-Fusion Dance Showcase - May 12, 2007

San Jose, CA See information on event;  

Sons of the American Legion Annual Potluck Dinner -April 2007

Bowling for a Cure - March 10, 2007 

Bolingbrook, IL 2 pm - 5pm

Archivers Crop Night - February 22, 2007

Ohio - for more information, check out www.gwenforacure.com

Charity of the Day - January 5, 2007 

On January 5th, Propionic Acidemia Foundation was chosen at the charity of the day. Use this link:  http://www.goodsearch.com/?charityid=499183 to go to goodsearch and goodsearch will donate 1 cent for each search.

Lights of Love

Month of December 2006 Columbus, Ohio

PKU Organization of Illinois Annual Meeting 2006 - The Links that Bind Us Together (PKU and Allied Disorders)

Saturday, November 4, 2006, Medina, IL

Panel participation by Jill Franks on behalf of PAF and families with PA.

Inaugural Squirrel Run for PA

Family 5K Fun Run/Walk

Saturday, November 4, 2006, 10:00 am Columbus, Ohio

For photos, Click Here. 

Inaugural Cornhole Tournament for PA

Saturday, September 30, 2006  Gahanna, Ohio

Brandon's 8th Birthday Party

Thank you for donating your gifts to PAF.

Reach for the Stars - 2006!!!

Click Here for Details!!!

Sons of the American Legion Fundraiser for PA 

April 8, 2006   Click here for details and photos.

Tinicum Elementary School 3rd Annual Talent Show

Thank you for donating your proceeds to help find a cure for PA!!!

Ryan Franks Raising Money with His PAF Can!

Winter 2006  Click Here

Franze Family Fundraiser In Memory of Vincent Franze

May 2005  Click Here

10k Fun Run - UK

May 2002

Raised about £8K between sponsorship and family donations.

PAF Fundraising Night - UK

2002

Raised about £4K in honor of Eilidh

 

 

Media Coverage:

Bikers help youngster with rare disease, Connecticut Post, Melvin Mason, 8/26/2008

Indian-Fusion Dance Showcase 2007 - News Asia article

Twinkle of Hope, The Columbus Dispatch, Matt Tullis, 12/30/2006

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If you or someone you know is planning a fundraiser or event please email us and let us know about it. We would love to post it for all the families to see.  We also have a Fundraising Guide available with information on having a fundraiser.

Email Jennifer Mouat at outreach@pafoundation.com

 

Propionic Acidemia Foundation

1963 McCraren Road

Highland Park, Illinois 60035

Phone: Toll Free 1-877-720-2192

 

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