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Family Stories

Eilidh

Hi, my name is Eilidh D. (Scots Gaelic pronounced Aylay) and I live in Aberdeen, Scotland, UK with my mum Ruth and my dad Alan.  I was born on 6th November 2000 and at two days old the hospital discovered I had PA.  I was in the neonatal ICU for two weeks before I came home.  I am usually in hospital at least a few times a year, but I also visit my consultant and my dietitian every month.  I love all the staff at the hospital and they spoil me. 

 

I have a g-tube to feed me when I’m sleeping and also for all my medicines and some foods and drinks.  When I’m not poorly, I eat all my natural protein allowance for the day, my favourite’s being baked beans & ham, toast, Quavers, bananas and spaghetti.

A few days a week I attend Raeden special needs nursery in Aberdeen.  I just love it and I get all my therapies there.  I also love going out on the bus on trips with my classmates.   I could start school this summer (2005), but I am going to stay on at Raeden another year and go to school when I am five.

I am very happy 99.9% of the time and have a great sense of humour and my Grandma says ‘my eyes are just full of mischief’.   I love music, watching tv, going to the park and ‘doing lunch’ with my mum’s friends!

If anyone wants to contact my mum Ruth they can do so by emailing oilfieldsales@aol.com