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Family Stories

Amber B.

Amber's story propionic acidemia Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School.  I have PA and I'm ok with it.  My favorite thing to do is listen to country music.  My favorite artist, right now, is Carrie Underwood.  I love to sing with her.  I love to eat anything that does not eat me first.  My favorite foods are spaghetti with marinara sauce, brocolli, and french fries.  I eat and drink everything by mouth, including my formula.  I kinda like the flavor of it.  I do have significant developmental delays, but I am very happy.  I have cool hearing aids, they are blue and white, and I just started wearing glasses.  Not too bad either.  I  have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.

I have a little sister, Tiffany, she has PA too.  To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor's office.

God Bless You,
Amber B.
Lithia Springs, GA
buicejoey@bellsouth.net